emotional anguish over TMJ splint therapy/braces/surgery. here's advice for YOU

This is the place to post general questions and comments about all areas of orthodontic treatment. Before you post a question, use the forum's SEARCH tool to see if your question has already been answered!

New Members: YOU MUST MAKE A POST WITHIN 24 HOURS OF REGISTERING OR YOUR ACCOUNT WILL BE DELETED. In other words, don't sign up unless you plan to actively participate in the message board immediately. This is necessary to keep out spammers and lurkers with bad intentions. Of course, you can read most forums on the board without registering.

DO NOT POST FULL-FACE PHOTOS or personal contact information on this website. We have had problems with people re-posting members' photos on fetish websites. Please only post photos of your teeth, not your whole face. Keep your email and your personal information private. Thank you.

Moderator: bbsadmin

Post Reply
Message
Author
spookygee
Posts: 15
Joined: Mon Sep 19, 2016 8:26 am

emotional anguish over TMJ splint therapy/braces/surgery. here's advice for YOU

#1 Post by spookygee »

hey everyone, i wanted to post this thread to give you ADVICE so you don't end up in the same situation i am in right now (although the jaw surgery was successful)

the truth is, little is known on how to treat tmj effectively. too many dentists fabricate occlusal splints and do not warn patients of the potential irreversible effects to the bite and how it could make things worse. only certain tmj specialists know what is right for each patient.

i seeked treatment 6 years ago for TMJ(a whole boatload of symptoms i no longer experience now thankfully), and was made a full-coverage splint by my dentist, had it adjusted every two weeks. it changed my bite. I always had a bit of an overbite or overjet, but the splint created an open bite that i was told had to be fixed surgically after pursuing ortho work after the splint. i didnt realize this all at the time. after the splint broke at the molars, he cut it in half and let me wear it for a few months that way. at that point, it basically became an NTI splint(covering the front teeth), which there are many stories online about how it changed other people's bites or gave them an open bite due to super-eruption of the uncovered teeth (in my case the back teeth)

i feel like i was lied to by my dentist who never mentioned anything about permanent bite changes. i also feel like i was lied to by my ortho who knew i wore the splint but didn't seem to think it caused any big changes. i recently saw a photo of my teeth before wearing the splint where more teeth in the front meet vs after the splint changed things. it made me realize what the splint did, and where the course of treatment led me. i was talked into having jaw surgery (lefort 1), and was scared sesame to go through it, but i ultimately did it anyway hoping for stable results and relief from the symptoms i was experiencing all the time

now looking back, all i think about was this web of lies that led me to have a major surgery that might not have needed to take place in the first place had i been treated/diagnosed properly. not only could i have potentially avoided the surgery with TADs(which i mentioned to the ortho as an option, but since they were new at the time, they were concerned about relapse), i probably wouldn't have even needed the TADs had i just had braces put on before agreeing to wear a splint. i probably should have done more research before agreeing to 'any' type of treatment, even the splint, but i was younger and didn't consider this and figured doctors know better than me or the internet.

i have emotional and anger issues now because of this. my past trust issues have manifested towards a lack of trust towards some medical professionals. i'm lucky that the surgery went well, but all i think about is that i had my face broken due to the negligence of my dentist and the emotional toll this entire process took on me. why would someone want to feel like they went through a major surgery for no reason, or that they accidently created the issue that necessitated the surgery? please, i urge you to consider this post before pursuing any medical treatment in the future

also the surgeon diagnosed me as having 'vertical maxillary excess' which is common in people with open bites or long faces, but because i didn't have an actual open bite until after the splint, it makes me question whether this diagnosis was pulled out of his ass. like the thought of if you can just have erupted molars from a splint and the surgeon can slap a 'now' questionable diagnosis on it

lots of people have bite issues their whole lives, know they need surgery years beforehand, and are more set on it than me - i had about a years time between being told it was required to the procedure itself. now i look back and think i made a hasty decision without doing enough research

i've posted these before, but here's some photos https://imgur.com/a/IJDPE

Marriedonmaui
Posts: 29
Joined: Sun Mar 19, 2017 1:31 pm

Re: emotional anguish over TMJ splint therapy/braces/surgery. here's advice for YOU

#2 Post by Marriedonmaui »

I'm so sorry. I feel the same way. I've had so many complications I would bore you to tears if I listed them all. I could have lived with what I had forever and maybe had to get some crowns later. At 42 with this surgery my bite is open everywhere and balancing on my premolars. I will need all posterior crowns when this is over. What I was trying to avoid. I'm mad at everyone on my care team (all though my surgeon has been good to me with my issues) I am especially mad at myself as a dental hygienist I thought I was doing the right thing, especially after interviewing several orthodontists. Im really depressed and anxious. I now have an open bite and and underbite. Looks ridiculous and nonfunctional. Praying for relapse, can you believe it. All that money flushed down the toilet. I know it will be hard to trust other medical personnel but most are really into it to help people not make a quick buck. You did what you thought was best at the time. I did too. Is there a solution for you? I could have my bsso redone at least to fix my underbite but I'm terrified to do so with all of my complications thus far. Thanks for posting. You are not alone although sometimes it feels that way. I get it! Be well and good to yourself.

Marriedonmaui
Posts: 29
Joined: Sun Mar 19, 2017 1:31 pm

Re: emotional anguish over TMJ splint therapy/braces/surgery. here's advice for YOU

#3 Post by Marriedonmaui »

Byw, looked at your pics. Could only open the first page. Which picture is before and after? Just curious?

Marriedonmaui
Posts: 29
Joined: Sun Mar 19, 2017 1:31 pm

Re: emotional anguish over TMJ splint therapy/braces/surgery. here's advice for YOU

#4 Post by Marriedonmaui »

I forgot to mention Sarpe surgery ruined my nose!!! Omg I am so depressed. My nose is wide, flattened, and looks droopy. Ugh if I could go back in time

Post Reply